Dyspraxic Journey

Tag Archive: organic acids test

Test results from Organic Acids Test (OAT)

So, after 7 months, CB finally peed in the cup needed for the Organic Acids Test. We actually ended up taping the plastic bag Great Plains Lab provided in the middle of the night. Come early morning, he had a slightly wet diaper but nothing in the bag…argh. So I reattached the bag and CB slept a couple of hours longer. The bag ended up not collecting urine, however, to our surprise, CB wanted to pee as soon as he woke up. He even peed in the cup – yay!! Small achievements :).

Well, we got the results back and it is not surprising that the report indicates excessive yeast and bacteria in his gut. You can view the results at OAT Results. Additionally, he may be low on serotonin and need L-carnitine supplementation. Based off the results and info we already knew, we plan to implement the following supplement schedule.

Morning

  • Multivitamin
  • GSE or garlic extract
  • NOW L-Carnitine (start with 500mg a day) (UPDATE: didn’t start this till 10/5 and started with 250 mg)
  • Fish oil
  • D-3

Afternoon

  • Probiotic

Nightime

  • Oil of Oregano

Daily

  • Limit sugar/carb intake (UPDATE 10/7: begin limiting oxalates)
  • Drink lots of water

We have to consider whether we want to add 5-HTP supplements, but I read it can cause seizures and gut problems. 5-HTP was recommended due to his lower serotonin levels and high High quinolinic acid / 5-HIAA ratio.  That doesn’t seem like a reasonable risk. Will definitely need to research more.

Some good news is that CB seems to be able to ride a tricycle pretty regularly now. He just sometimes needs help with initiation. I just now need him to be successful at home :).

We are still seeing tons of verbal growth from CB. He sometimes emits responses with up to 7 words. His STs are also happy with his progress. At this point, CB will get 4 days of private ST and 1 day of group ST through the school system. He also gets OT 1 day, PT 1 day, swims another day, and has karate on the weekend. He started a private pre-k last week and attends for 15 hours a week. I believe he is with the 3 year olds right now academically but he is progressing and really enjoying himself. I am really happy with the schedule we have lined up this year, even though we are driving all over the place Monday-Thursday :). We know this is just the plan for this year and I have a feeling he is going to grow tremendously in all areas. Both his OT and PT are big proponents of reflex therapy and they know each other. They plan to collaborate. We also implemented a therapy journal and so far I think it is very helpful.

It feels good to be in a positive place :)! With our kiddos and I guess life itself, we take it moment by moment. When we have these moments of comfort, it feels so good to just relish in them and appreciate where we all are. The future is unknown and all we can do is put the wheels in motion now to help our children be better prepared mentally, physically, and emotionally for what life deals them.

 

 

September 3, 2015 Growth and Progress, Tests & Evaluations, , , , , , , , 0 Read more >

Health Update – Perianal Streptococcal Dermatitis

So, it turns out the red ring around CB’s rectum was not due to a yeast infection. We still believe the infection formed from the chigger bite on CB’s penis. We think he scratched it and got it infected and then passed that infection to his bottom. For the past almost 2 weeks, the ring has been present, his rectum became increasingly itchy, his pee and poop accidents became a daily to 2x a day thing, his diapers were completely full or overflowing at night, and he mentioned having a headache a few times. We took him to urgent care since we are out-of-state right now and had him tested for strep. Yep, that is what he has. It is perianal streptococcal dermatitis. Since CB reacted to amoxicillin with a rash covering his entire body after taking it to treat an ear infection when we was <2, we asked the Dr to prescribe something else. She prescribed him azithromycin. It is day 4 of taking the medication and the ring and itchiness are definitely improving. He also had no accidents today and the slight rash on his bottom that has been present since January seems to be improving. We also got confirmation that HB also has strep and started him on azithromycin, as well. In addition to having the rash after taking amoxicillin, CB also developed a yeast infection. CB is taking probiotics so this should help combat a yeast infection from starting from starting the antibiotics. I have also started giving CB & HB goat’s milk yogurt to just help ensure the yeast infection does not form.  We have introduced dairy on occasion over the last 2-2.5 months. So far, CB hasn’t shown a reaction. The exposure has been very limited though. Hopefully, giving him the yogurt to fight off a potential yeast infection will not backfire and cause another issue.

The other interesting thing is that we were trying to get a comprehensive parasitology x3 stool test from CB to send to the lab to determine yeast, parasite, and bacteria levels within CB’s gut. We requested this test before this whole thing started. Oh well, we will wait till CB’s system is better and then take the stool test and finally complete the OAT (organic acids test) urine test. The lab is sending us some urine bags so we can collect the urine samples during the night while CB has a diaper on. It has been impossible to get CB to pee first thing in the morning, which is the requirement for the OAT test.

July 30, 2015 Allergy, Diet, & Supplements, Tests & Evaluations, , , , 0 Read more >